“And
your ears shall hear a word behind you, saying, ‘This is the way, walk in it,' when you turn to the right or when you turn to the left." Isaiah
30:21
The past couple of years have been a rollercoaster of
remission and relapse, highs and lows. During the highs, we spent weeks meeting
all our travel goals. During the lows, I spent time in the hospital, once for as
many as 51 consecutive days. With high hopes that a promising CAR T-cell trial
would give me a complete remission and at least a full drug-free year, I
discovered instead that it has tethered me to the hospital for the past five
months for thrice (and now finally, twice!) weekly blood transfusions. And the
cancer? Well, it dropped dramatically to very low levels, but its persistence
is worrisome, even after a good bout of cytokine release syndrome.
During my recovery, I have often wondered whether I heard
God correctly. Was I really supposed to travel across the country to live away
from my family for 3 ½ months? While everything seemed to fall into place so
easily, I know that doesn’t always mean it was God’s idea. And yet…I’m still
here! I’m able to drive myself now for the 4-hour round trip to the hospital!
My counts are slowly recovering, with neutrophils back online, platelets
holding for 4 days, and red blood cells holding as many as 12 days. It’s not
where I had hoped to be after 5 months, but the prognosis before entering the
trial was pretty grim. I took a chance, and even though I barely survived it,
by His mercy and grace I've experienced many joys during this difficult season.
For one, the coronavirus quarantine has worked to my
advantage, as it meant we had two wonderful young people in our home for
several months: our youngest daughter, whose senior year of college ended
abruptly, lived here while waiting to move closer to a teaching position this
month, and a joyful college student who couldn’t return home to India stayed
here until his college reopened this week. Our daughter was a tremendous help
with driving me to appointments and making us delicious meals. In addition, two
sisters-in-law and a niece moved to our small county for added fun and
companionship, and we had numerous birthdays and anniversaries and holidays to
celebrate. I’m incredibly grateful to have been here for it all, yet still wondering
whether I heard God correctly as my prayer for complete healing goes unanswered.
In fact, I need more healing than ever before right now! But today I’ve taken
great comfort in the words of Susie Larson in her Daily Blessing for this
morning, “Most answers to prayer come subtly, bits at a time. If you’ve been
waiting a long time to see a major breakthrough, today’s a good day to look
around at all of the prayers God has already answered….Don’t discount the small
answers while you wait for the big ones.”
Every day’s a good day to remember what God has done for me.
It might be something as subtle as a change of attitude, an opening of my heart
where it has become hard, or gratitude that I can walk up the stairs without so
much breathlessness. Right now, it’s the joy of being able to put my thoughts
down in writing again and finally return to this blog! I need to remind myself
to count my daily victories, sometimes hour by hour. God is always there,
whispering which way to go. My spirit must be willing and still enough to hear
His wise voice. But even if I mess up, I can rest assured that He’ll redirect me in the way that accomplishes His purposes for me.
Thank You, Father, for
Your constant faithfulness. You always know when we need encouragement, and You
always show up right on time. You know when we are going to mess up, and in
Your great mercy and love, You always lead us another way. Thank You for using
our trials to bless us, for turning even our difficulties into joys. To You be
the honor, glory and power! Amen.